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A range of tools have been collated/developed to assist Social Care staff in their assessment of need of someone with a Disability who is showing signs of ageing.  

The Ageing Well checklist is designed to prompt you to think about what to look for when you are out reviewing, to make sure that everything is in place to support the Adult to age well. Do not send this out to the Provider in advance, as it is for you to ask to see and review all the documents and tools whilst you are there to make sure that they are relevant and up to date.  

Health Tools

Click on the icons below to find out more, before you go out with your Ageing Well checklist to complete a review, so that you can be sure you have sufficient knowledge and information about the purpose and function of each of these tools and the importance of them being in place where relevant.  

For further information regarding the health tools, contact Jenny Peckham, Provider Quality Innovation Manager, who has led on upskilling the Provider Market in the use of these. Jenny.peckham@essex.gov.uk 

Health Action Plans    https://www.youtube.com/watch?v=Tr--ihhcxg8    

Annual Health Check    https://www.youtube.com/watch?v=033HqM8nACI   

Reasonable Adjustments    https://www.youtube.com/watch?v=sbeeyAPFAok     

 

Further Support 

Consider the value of a joint review with Specialist health colleagues where you have concerns about someone’s health that’s affecting their well-being. Contact the relevant LD specialist health team to check whether the person you are meeting to review is known to them.  

The person can be supported to request help from Essex Learning Disability Partnership ELDP with things such as advice on reasonable adjustments, support with making informed health decisions (particularly where someone refuses treatment, has a DNACPR proposed or in place without just cause or has anxieties/phobias) or any LD related conditions.   

https://www.eldp-hpfteput.nhs.uk/ 

There is a direct referral link contained within this website https://www.eldp-hpfteput.nhs.uk/people-who-use-our-services called ‘Way in’ and these are the contact emails for each area of the County, depending on where the person lives.  

Better Standards of Care – Easy Read 

South: Epunft.ldreferrals@nhs.net 

North: hpft.necommunityldteam@nhs.net 

Mid and West: hpft.mwcommunityldteam@nhs.net 

Communication Passports and Life Story Books

Alongside the relevant health tools, it is important that with potential changes in accommodation as people with disabilities age, their life story and essence of who they are, is not lost or forgotten.  

Their Communication Passport will be a key tool to help staff who do not know them, to understand how to communicate with them and a good quality Life Story book will help give them things to talk about as they get to know the person. Both are essential tools to support someone to interact with others.  

What is a Life Story Book?

A life story book is a collection of stories and memories that characterise the significant relationships and events over a person’s lifetime.  

There is no one way to produce a Life Story book as they are unique to the person.  

For some people, the reality is that as their needs change, a move to alternative accommodation becomes more likely. Service Providers may well have been supporting someone for many years, so long that they know their life history and who they are without even thinking about it. But what about if the person had to move to somewhere new because of, for example now having nursing needs, how would the new staff get to know who the person is, their likes and dislikes, the quirks that make them who they are?  

One of the greatest things that you could do, is support someone to capture their life story, to be shared with others as necessary. This could be in the form of an i-pad recording, photos, symbols, easy read, a collage, music, the list is endless, whatever best suits the individual and that they can understand. Imagine a new person arriving in one of the homes with a Life Story book in hand, how helpful would staff find that in their quest to get to know and understand who the person is?   

Many people with Learning disabilities who are ageing, will have ageing or elderly relatives who are likely to have valuable memories and stories to contribute to the Life story book. Suggest that the Provider help the person to engage with their families to help capture some of this information to go into their Life Story.   

Take a look at some examples of Life stories and memory boxes in the photos and links below.

 Collage of a life story

Photographs of a life story

Image of a collage

My Life Story scrapbook example

Youtube example of a Life Story Template

 

Communication Passports

‘A communication passport is a book that helps to convey important information about an individual. They can be used to bridge the gap in communication that people with communication difficulties often experience. Communication passports help to empower individuals and they help to inform the reader of a person’s life and personality.’
Essexice.co.uk 

A person’s Communication Passport will be a key tool to help staff who do not know them, to understand how to communicate with them and will help give them things to talk about as they get to know the person.  

It does this by: 

  • Describing the person’s most effective means of communication, so that others can be better communication partners 
  • Drawing together information from past and present, from many people who know the person, and from different contexts 
  • Presenting the person positively as an individual, not as a set of ‘problems’ or disabilities 

The communication passport belongs to the person – not to staff or family, though they may help him or her to use it appropriately and update it. Passports are especially important at times of transition when new people come into the person’s life and information may not be passed on. They are also helpful when new or temporary staff or volunteers meet the person, helping them quickly to acquire key information. 

Templates and Tools:

Loneliness and social isolation often increase as people get older for a variety of reasons. Loneliness is one of the main causes of low mood and depression.  

In addition, people with a Learning Disability often go into old age with few friends and connections outside of those paid to support them. Recent engagement by Summit Advocacy on behalf of ECC, with adults with a Learning disability who are ageing, sited ‘loneliness and having no friends’ as their main concern.  

This Presence to Contribution tool will help when talking with people about what they do on a day-to-day basis and the opportunities these present for getting involved, meeting new people, making connections and contributing to their community. Whoever is providing support could help the person fill this in as part of their weekly activity planning.  

What it does 

It asks people to think about the places that are important to them, where they go now and how they can develop these interests further. This helps us to think about possibilities in the future and plan actions to make positive change, supporting someone to be a contributing member of their community. 

How it helps 

It provides a structure to think about what a person does on a day-to-day basis, so that we can see opportunities for them to make new connections, meet new people and contribute to the community. Contributing to a community is more than just attending, it’s about people knowing your name, engaging with you, finding out who you are and you giving something back to that community.  

This tool is a way of having a conversation with someone to find ways to enable them to be part of their community. It enables you to record what the person is interested in (or take this from their one-page profile), what it means to be present for an activity and what they could do to contribute to it more fully. It asks people to think about the places that are important to them, where they go now and how they can develop these interests further. This helps us to think about possibilities in the future and plan actions to make positive change, supporting someone to be a contributing member of their community. 

Consider promoting the use of the Presence to Contribution tool, to help make sure that people are being supported to really belong and connect.  

Use following resources have templates for community engagement and guidance on how these can be used 

Lifestyle Planning - Presence to contribution

 

‘Planning for the future helps people with Learning Disabilities live healthier and more fulfilled lives for longer’ Source: NICE – 2021

Although the guidance produced by NICE has a focus on LD, the value of Future Planning for a healthy and happy older age is relevant for everyone and seeks to ensure that people think ahead about the issues that they may face as they approach their older years.  

A Future Plan for ageing well should consider the following areas: - Housing, Health, Support Networks and friends, Money and Legal Issues, crises, TEC, making decisions, Deprivation of Liberty, giving support and Advance directives/End of life.  

Future Plans should be produced in a way that suits the person so could be visual, recorded as a video or sound clip, created from signs and symbols, as a collage or written in easy read.  

There is no one template being promoted by ECC for this, what’s more important is the content and it being person centred and understandable for the person. 

It’s important to try and ensure that all adults with a Learning Disability who are ageing, are being supported to think and plan ahead, to have an enriched and happy older age. Providers in the Market have received training in supporting others to create a Future Plan, so when undertaking the review ask to see what has been produced and record in their review whether it is in progress or completed.  

Click on the icons to find out more about Future Plans for Ageing Well.  

Last updated: 16/06/2022